My Quicksand of Forgetfulness

  So excited to have my second Lequembi infusion! The nurse at the infusion told me I am a pioneer. She told me there are only four patients in southern Nevada receiving this new treatment. The other infusion center is in Reno, Nevada ten hours north. I asked why more patients aren't getting this new, hopeful drug. She said they don't know about it or aren't seeking treatment yet. I am lucky to be a guinea pig and lead the way. The only side effect I have is hot flashes with a rash. The nurse said other patients have reported headaches and body aches. Not me! My nurse is from Rochester,  New York.  I told her that my Dad is from the small town of Fairport right next door. She got a big smile and said she went there a lot. I should tell her my Dad was a doctor at the University Hospital in Michigan. Small world 🌎  I am sitting in a recliner now with an infusion in the inside of my elbow. It is painless and I am grateful for the hope each drip gives me. 🙏  ...

I have hope! I will be a human guinea pig for the new drug 'Lequembi' to treat Alzheimers. I feel like I won the lottery. Not for inheriting Alzheimers, but for having the opportunity to try the new drug.  I can't control that I received the Alzheimers gene from both sides of my family. What are the chances? I can control that I took action and made an appointment with a neurologist for an assessment. It was fate that my husband and I decided to move to Las Vegas. It just happens to be the home to the world renowned Cleveland Clinic for Brain Research where I am now a patient. I didn't chooses this disease. It chose me from previous relatives who passed it on. I can't blame them. I can do the best I can do under the circumstances. I told the doctor that I am willing to do anything to recover. He kindly told me that I will not recover my lost memory, but that I qualify for a new drug that that will hopefully stop it from getting worse. My hope meter rose ...

I do and am hopeful about the new drug. I have many wishes. I feel optimistic.  I am grateful for modern medicine, doctors and nurses. I began my first treatment of Lequembi yesterday.  It is the new Alzheimers drug that is administered at a medical facility. I was excited to start my first dosage yesterday! I drove 40 minutes across Las Vegas to the only facility that provides the drug in my city. My husband was attending an all day workshop for Caretakers at the Cleveland Clinic.  I think I had a better day than him.  Mine was spent at a modern medical office with lounge chairs and couches for the patients to relax in while receiving the IV treatment.  I had a view of the mountains and a cart full of snacks to keep me happy. It lasted only 45 minutes and passed by quickly. It gave me hope and the feeling that I'm doing something to fight this horrible disease. I will continue this procedure every couple weeks.  My husband had a good day with a...